Sickle Cell Community Liaison

Quick Facts

• Role: Sickle Cell Community Liaison (field-based, community-facing)

• Key focus: Patient engagement, education, and coordination of community activities

• Work style: High community presence with extensive travel

Description

The Sickle Cell Community Liaison is responsible for coordinating patient-related activities across the community and NNI, serving as a single point of contact for patients and caregivers. The role educates patients and caregivers on disease state, available NNI products, wellness and lifestyle topics, and NNI patient services through one-on-one meetings and community events. The liaison also provides local market and community insights to internal stakeholders and supports patient advocacy and territory execution.

Responsibilities

• Serve as a central point of contact for patients, caregivers, patient organizations, advocacy groups, and specialty pharmacy representatives

• Engage patients and caregivers with education on disease state, NNI products (once available), wellness, lifestyle, and patient services

• Promote shared decision-making and help patients take action in their own care

• Provide education via one-on-one discussions, small group meetings, conferences, and community events

• Understand local/state/national healthcare issues affecting the sickle cell community and align with Government Affairs

• Deepen relationships with state and local advocacy organizations and non-traditional partners

• Coordinate policy initiatives with Government Affairs

• Build, maintain, and execute a strategic business plan to cover the territory

• Plan and conduct meetings with community organizations to educate on disease state, NNI products (once available), wellness, lifestyle, and patient services

• Lead planning, execution, and pull-through of speaker programs

• Manage discretionary budget and optimize field travel and resource utilization

• Execute activities in collaboration with leadership, legal, and compliance to meet NNI Way and regulatory/policy requirements

Requirements

• Bachelor’s degree required (scientific degree preferred)

• Minimum 3 years relevant experience (sickle cell healthcare, advocacy, non-profit community leadership, business-to-business sales, or pharmaceutical/specialty sales)

• Spanish proficiency (fluent/high-level preferred) in oral and written communication

• Travel requirement: 50–75% overnight travel; evening and weekend events

• Valid driver’s license and good standing per Motor Vehicle Records points threshold

Benefits

• Inclusive recruitment process and equal opportunity commitment